Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Sunday 19 August 2012

Good news!

We heard on Friday afternoon that all Ryan's scans are fine! I have to be honest and say i had prepared myself for the worst, as we had been waiting just over a week for the first scan, and so the feeling of relief really was like a huge weight being lifted. This is the news we prayed for and what we needed in order to proceed with the transplant.

We are just waiting for the bone marrow results......


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