Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Get involved

At the present time we are taking a break from fundraising, and enjoying normal family time together.  We have reached our fundraising target and covered the costs of Ryan's treatment.  However if you would like to get involved there are lots of ways in which you can help us raise money for Ryan and children like him, simply get in touch with the fund raising team at the NCCA UK.  Their details are at the bottom of this page.

Donations: Even the smallest donations add up and make a difference. To donate on-line via Ryan's justgiving page simply press the Donate button on the right hand side of the screen to give to Ryan’s appeal.  If you would rather send a cheque please make your cheque payable to 'NB Alliance UK - Ryan Appeal' and send it to NB Alliance at the address at the bottom of this page.

We opted to fund raise with the The Neuroblastoma Children's Cancer Alliance UK (registered charity number 1135601).  The charity raises money to benefit children suffering from neuroblastoma, to fund research into neuroblastoma, and to achieve other charitable purposes which seek to assist children suffering from neuroblastoma. 
With this disease you need to act quickly, you need to raise money quickly and the thought of trying to do this alone was overwhelming.  The charity has been a great support to us in helping us get our fund raising pages up and running.  We also have the reassurance of knowing that if for any reason we are unable to use the money raised for Ryan that it will be used to help another children with this monstrous disease to get the treatment that they need.

The charity welcomes general donations and donations to designated appeals. 
You can find out more about their work and appeals at www.ncca-uk.org

NCCA UK
CAN Mezzanine,
49-51 East Road,
London 
N1  6AH
Telephone 0207 284 0800 
Fax 084 4884 6407
E-mail: info@ncca-uk.org

1 comment:

  1. We are holding an event on 15th Sepetember at Exeter Transport Club. Called Rockin' for Ryan
    it will be an evening of Live Music, Karaoke and Disco. Everyone is welcome.
    For more details email:
    markbennett20@sky.com

    ReplyDelete